I had Dinkys annual review yesterday.
Parents evenings in both mainstream schools haven’t exactly gone down very well. Actually I only got invited to one, and they just handed me her ‘suspected levels’ at a TAC meeting in the second mainstream. Dinky’s PDA was hindering her progress, and no one could tell how much.
So 1st annual review. A room full of people from the special school, the social worker and dinky.
It was rather nice having Dinky in the room, she was only staying for a little while, she kept saying “mummy” and touching my arm. She was very excited to have me at school!
Once settled, the principal got everyone to write one thing they admired about Dinky, one thing they thought was working well, and one thing they felt Dinky could work on for the next annual review.
It was nice to hear everyone say Dinky made them laugh and has a cheeky grin, and helps the other learners sometimes. It was interesting to hear that actually her writing is considered good by the head of key stage (I will come to that later), and although half the room praised her joining in, apparently she needs to attend more of her speech therapy sessions! Her teacher said she needed to push herself, which Dinky completely misunderstood and put her hands on her chest and pushed herself backwards several times, which raised a chuckle across the room.
We watched a slideshow of dinky in her class. Then Dinky’s views were given, dinky had been given a large piece of paper and with the teacher was asked
What do you like best about school
My Dinky, ever trying to give the ‘right answer’ wrote ‘yoo’ as in her teacher.
What is your favourite lesson
She wrote hoes ridia – she wouldn’t talk so her teacher helped her sign horse riding.
What lesson don’t you like
Dinky drew some lines (pretty sure this was avoidance) the teacher wrote ‘another learner being silly’
Who are your friends
Dinky wrote her friends names, she basically missed off the child who pulls her hair and put the teacher on.
Is there anything you don’t like about school
Dinky drew a picture of her with a sad face being held by the wrist by an adult
This almost had me in tears. Dinky sat there while everyone took that in, the principle said that from now on Dinkys plan will be amended and wrist restraint will no longer be used. Which is great, although I suspect the next annual review will be a picture of the double elbow.
If they insist on pushing her, they will have to restrain, it is how it works.
Apparently everyone got to see the review pack the school prepared before the meeting, except me.
Behaviour wise, they are using pda stategies and with the more constantly used indirect language dinky is starting to trust them more, they are seeing a massive reduction in meltdowns. 11 physical interventions in March, 3 in April (although they missed the fact that April was only 2 weeks due to Easter holidays).
Just under 50% of meltdowns were due to demands, over 25% were transitions, about 10% (hard to tell on a pie chart) activity interrupted and the final 15% is other learners behaviour
Not all meltdowns are cause for physical handling, they have realised that I was right, give her space and time and she will calm faster than someone touching her.
My views. Well, basically I was told there is no point in amending the statement because they (the LEA) won’t do it. Also despite the blatant character assassination of Dinky by her former school quoted in the current report, there is also no point in getting a new ed psych report as school don’t believe that she will engage for the ed psych as she is still not receptive to the school doing assessments.
The school believe that possibly in 4/5 years, when Dinky reaches secondary age, she may well be able to join a mainstream if they have a special unit attached. I wasn’t expecting that kind of prediction, but I said “over my dead body will Dinky return to mainstream- I already said I didn’t want dinky in a mainstream environment, she has been in two mainstreams within 1.5 academic years, and neither suited her. She couldn’t cope with them and they couldn’t cope with her. The ONLY reason you are seeing ANY progress is because you can give her the environment she needs to learn without always knowing she is learning mainstreams, even ones with units can not hope to provide the environment you can. They will constantly push for her to join the class and Dinky can not be in a class of 30 constantly being given demands- it won’t work.”
I was told this is a far off future thing to work towards and I said I will not work towards my child going back into an unsuitable environment. I reminded them that I have had dinky at home far longer than any school has managed so far since she reached compulsory school age! That they do not know what that was like when dinky was being excluded for walking around the school on bucket stilts, or being in the wrong place for too long, or needing a break from the classroom, in most mainstreams square pegs are thrown in the naughty bucket and left there.
They conceded and said that it wasn’t well thought through as yes most mainstreams would love to give children the environment that this school can offer but they can’t. I said they haven’t had Dinky long enough to make any real predictions.
When it came to speech and language, they contradicted themselves, one minute she is considered within lower normal range, then said she won’t engage so they don’t know for sure. (Reading the report they like the other two speech and language therapists before them, they didn’t do a whole test,just managed one module in one test and one module of another. The one she showed age appropriate skills she also made some errors which show Dinkys difficulties with non literal language and imagination- yet further on in the report she has a great imagination 😒) I do know that dinky isn’t as far behind as she was with speech and that is due to her weekly speech and language sessions.
When the teacher (new teacher) started talking about Dinkys participation being really good I had to hold back my tears of joy! They agree the free flowing early years style teaching suits Dinky and allows her to join in. She writes more often and is starting to make progress academically! I was overwhelmed! It’s amazing, and something I had not heard in mainstream apart from her reading.
Her reading is above average for her age! I was so utterly proud and overwhelmed in that moment. Dinky has always been interested in reading and I have fostered that from a young age. Dinky has an amimal and lego fascination and I have brought tons of books to help teach her reading and about the animals she loves so much.
They said Dinky was ‘able’. Yet reading the report she is roughly that of a reception age student still. It’s great that dinky doesn’t have severe learning difficulties like some of her class, but I don’t see that the small progress she has made in a term by participating allows them to believe that:
A. This period of participation will carry on, as is, throughout the next 4/5 years
B. Dinky will be able to zoom ahead by two years to catch up with her mainstream counterparts.
I would love to share their optimism, but their belief is contray to evidence of Dinky and PDA in general. I have had to come to terms with many things as a parent of a child with PDA and one of those is that Dinky will never be able to participate at a mainstream level appropriate to her age. To raise my hopes, without knowing the child fully is cruel. What if I was still in denial hoping for a mainstream return? Do they believe they have cured PDA? Or will cure it? No, so why? Why make these statements about a child they have known for a few months?
I believed the fight would be over once dinky went to a special school that I wouldn’t have to explain her autism or her more specifically her PDA. Again I told by a school they understand the condition but the annual review suggests otherwise.
This is why awareness days matter, because when a condition is little known, parents and families are given the wrong advive, impression and are let down time and time again. The only way this school are going to learn is to have dinky in their school for the next 4/5 years, watch her lose her writing ability again for the 4th or 5th time, watch her go through stages of participating and being happy to being unable to cope with any demands and being visably anxious. They will have to see that their exploitation of periods of relative calm will come back and bite them in the backside! I did say to the social worker after the review that it is ll well and good for them to say this but this is the time that the other schools started having problems, just wait until they see the second term in full swing. Maybe it won’t be until the third term when she realises that this is not a holiday camp and they start pushing her more like they said the review.
So there is good news mixed with the not so good. The social worker said that it seems odd that her small progress is being used against her, and the social worker doesn’t feel she will cope in a unit in mainstream, she has the report from the previous social workers and the last school , she knows kids in the units and Dinky doesn’t seem suitable for them. She agreed I had very good reason to not want a return of mainstream and for what it is worth she believes I am right. the point I made I’d that Dinky is 7! Secondary is a long way off. At least they are not trying to get rid of her now.