For those that regularly read this blog, they will know how much energy and passion I put into trying to get dinky the recognition and support she needs.
So days like today are such a kick in the gut and lead me to question why I bother trying.
Now, I’m going to put this in bold so that people understand
I don’t blame the children involved
Let me explain.
When Dinky went to her first school it was apparent she had additional needs and I was told there wasn’t a 1:1, that a lad in the year above with a diagnosis of ASD but without a statement was getting 20 hours of LSA and the other was for a child with a statement.
The lad who didn’t have a statement, his mum said to me a few months back
“ASD is different to being autistic, my son is autistic”
So it can be assumed that she hasn’t actually read a book about autism, she has just got the diagnosis gone back to work full time and the childminder I had for Dinky dropped her to look after this Lad.
Frustrating, especially when I lost my job due to no childminder, and I’m the one that recommended the childminder!
Then, when Dinky was having problems at the latest school, we began to use the office entrance. There we met another lad who struggled. On talking to his mum, she has seen my PDA aware keyring on my bag, looked it up and had her PDA lightbulb moment! I was so happy that my keyring fulfilled it’s purpose.
It becomes frustrating when the paediatrician who didn’t know what PDA was and was being retrained due to my complaint, diagnosed him with PDA a month or so back. Of course it is great for the child and the parent, but I have been trying to get this to happen since March, so it is bittersweet.
The lad is the same lad that gets support from the autism charity that turned Dinky down.
We have been in exactly the same place in the statement process all along, same PPM date, same statutory assessment date ect.
Today, I found out that he has a place in the special school I want Dinky to go to. I haven’t heard. I am pleased for him and his mum, the head teacher there really gets PDA, and he will do great there.
But the mum in me screams.
What about Dinky?
Why do other children get the nod over Dinky at every turn?
Of course I DO NOT blame the children, they are getting what they need as they should.
Makes me wonder what on earth I have to do to get Dinky the education and support she needs!